https://ogma.newcastle.edu.au/vital/access/ /manager/Index ${session.getAttribute("locale")} 5 https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:12106 Wed 11 Apr 2018 11:33:10 AEST ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:51989 Tue 26 Sep 2023 10:53:45 AEST ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:33796 'They are the priority' overarched two subordinate themes that emerged from participants' descriptions of the struggle with acceptance and finding positive meaning. Participants oscillated between conflicting feelings about their sibling with 22q11.2DS always taking centre stage. For example, they felt anger, guilt and resentment; yet, they also embraced patience, empathy and gratitude. Conclusions: This phenomenological study provides a foundation for future research relating to 22q11.2DS and fostering family wellbeing, particularly around acceptance and psychological growth. The siblings in this study actively withdrew from their family to allow prioritisation of their affected sibling. However, this does not mean that their needs should be overlooked. There are easily accessible resources to support siblings of individuals with disabilities, and it is important for health professionals and parents to consider these options.]]> Tue 15 Jan 2019 15:31:49 AEDT ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:49324 Tue 14 Nov 2023 14:39:20 AEDT ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:36206 Thu 17 Feb 2022 09:29:46 AEDT ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:6821 Sat 24 Mar 2018 07:44:08 AEDT ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:48636 Fri 24 Mar 2023 13:16:39 AEDT ]]> https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:48104 Fri 24 Feb 2023 15:38:00 AEDT ]]>